CDC: Long-term health outcomes of people living with spina bifida
Purpose of the award
- Component A: National Spina Bifida Patient Registry (NSBPR)
- To collect high-quality longitudinal data on children and adults with spina bifida (SB) who get care in specialized SB clinics that are part of the National Spina Bifida Patient Registry (NSBPR).
- Component B: Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE)
- Carry out and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will collect and analyze data on patients with SB to:
- Better understand health outcomes after interventions and treatments.
- Share findings to identify opportunities to improve care of patients with SB.
- Carry out and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will collect and analyze data on patients with SB to:
Investigators may apply to either Component A or Component B, or both.
Details
Funding type: Cooperative agreement
Project Period: 3 years
Average award per applicant over the period of performance:
- Component A: $300K – $600K
- Component B: $150K – $300K
Key Dates
Information session: September 17, 2026, 2:00 pm – 3:00 pm ET
Optional LOI deadline: September 26, 2026
Application deadline: October 26, 2026
Expected award date: August 1, 2027
Expected start date: September 1, 2027