CAIRIBU
CAIRIBU
Collaborating for the Advancement of Interdisciplinary Research in Benign Urology

Stakeholder Engagement

RESOURCES

Institutional Stakeholder Engagement Resources. Many institutions have resources to help investigators engage with stakeholders at each step of the research process – from initial stakeholder outreach and engagement to dissemination of results.

  • Check out this inventory of stakeholder engagement resources at CAIRIBU-affiliated institutions for more information.
  • Looking for funding? Find a list of stakeholder engagement funding at CAIRIBU-affiliated institutions here (located under the institution-specific CTSA Stakeholder Engagement Funding tab).
  • How Community Engagement Is Enhancing NIDDK Research (Paul L. Kimmel, Nichole Jefferson, Jenna M. Norton and Robert A. Star CJASN May 2019, 14 (5) 768-770; DOI: https://doi.org/10.2215/CJN.14591218)

Wisconsin Network for Research Support (WINRS). WINRS has toolkits available to help incorporate stakeholder engagement into your next research project (learn more):

  • Patient Advisor Toolkit 1: Orientation for Patient Advisory Committees (PAT-1)
    PAT-1 is a comprehensive set of modifiable resources for conducting an orientation with patient advisors. The toolkit provides a complete, step-by-step guide to preparing patient advisors to work effectively with researchers. First published in 2018 and issued under a Creative Commons license, PAT-1 is available for free download at the HIPxChange website.
  • How to Recruit and Retain Patient Stakeholders: An Engagement Guide (HARPS)
    How to Recruit and Retain Patient Stakeholders: An Engagement Guide (HARPS) is a set of planning materials for researchers and others who want to engage diverse stakeholders as advisors on patient-centered projects, including patient-centered outcomes research (PCOR). First published in 2016 and issued under a Creative Commons license, HARPS is available for free download at the HIPxChange website.

PCORI Resources

HARPS Resources

Other Resources

  • GR Thomas Advisors – GR Thomas Advisors offers experienced consultation to successfully engage patients, Veterans, community members and other stakeholders. The goal of their work is to promote health innovations, effective research, health equity, and to speed the process of translational science. They create unique partnerships with clients and target populations, developing tailored strategies that empower diverse stakeholders to draw on their own lived experience in order to provide actionable advice.
  • “Closing the loop” template

CAIRIBU Stakeholder Engagement Workshop, 4-part series, March-June 2022. Basics for Health Science Researchers: Putting the Pieces Together Resources